About Lilian
Motor Neurone Disease
I’m a South African tomboy, who moved to New Zealand and worked my way up the insurance industry from typist to Senior Underwriter. I’ve experienced bad health, unnecessary surgery, and a diagnosis of Motor Neurone Disease, but I know that my life is defined only by my attitude.
Beyond the portrait
A few years ago, I was diagnosed with potential Upper Motor Neurone Disease. That followed a misdiagnosis and unnecessary hip replacement in 2011. Since the hip replacement I have had physical disabilities, with restrictions to my ability to walk.
Embracing the power of my difference
I don’t generally view myself as disabled. With a tomboy-history I was used to riding motorcycles, playing tennis, even sometimes digging into the pain of paintball – all those abilities are now either diminished or gone. I am however still confident in myself and hold my head high. I know I have a lot to offer in various areas and I am approachable and willing to share information to help others grow and develop. I have a sense of humour that is sometimes a little inappropriate, but this also means I can laugh at myself.
I accept my disability for what it is. And I accept I have emotionally and physically challenging and heavy days. Even when I see people staring, I take comfort in the fact that I am a strong woman, fulfilled at work and in my marriage. It is not something everyone enjoys. The most important lesson I have learnt is to ‘get up again’ no matter what.
Building #BraverCultures
I hope I inspire people to enjoy life to the full. All I desire is for people who struggle with any kind of challenge to understand there is help, truth and peace to be had.
I firmly believe that “Your Attitude determines your Altitude in life.” No one is automatically entitled to promotions or special treatment – these things are earned.